Her corneas are cloudy (glaucoma), this can usually be fixed.
She has cataracts forming, this can usually be fixed.
She has PHPV, this can usually be fixed.
Jenna will be completely blind in under 3 years,
based on the rate that she lost vision last year.
She will be blinded by glaucoma and cataracts.
In June, the doctor, who last year said we need not worry about Braille, with all the other technology available, and with Jenna's CCTV, she wouldn't really need it. This year, that same doctor looked at me and said "learn Braille--FAST!" So we have a lot to take in, and learn. Last year her "good" eye was 20/500, this year it is 20/1280. (20/200 is legally blind) At 2" from her eye, words have to be 6.4M, or 6.4 times the size of newsprint for her to read them. She cannot see me when she walks into a room. She cannot tell that someone is talking directly to her (sitting right next to her), unless they say her name.
I know our God can heal her if he chooses. BUT, as responsible parents, we must prepare Jenna for the worst case scenario. Emmi has volunteered to learn Braille with Jenna, by feel, I will learn it by sight. Jenna is not currently in cane training, but I am purposely not holding her hand on errands, and making her depend on her cane more.
Wow, I don't know what else to say, we're still digesting it all, and figuring out a plan of how to teach her things.