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Waid's Dr appt

 On Wed. Waid saw a pediatric opthamologist.  He also got a very extensive ultrasound on both eyes, done by a Dr, not just a technician.  The opthamologist was very thorough, and informative, although there wasn't really any new info.  I felt bad for him, really, as he sat for a moment, gathering his thoughts, to tell me that Waid would always be legally blind, and things would not get better.... I already knew that.  He verified the same info that we got last week.
He thinks the anaridia is only in spots--Waid has some parts of his Iris's.  The Dr. said he will probably get Waid's kidneys checked for tumors periodically, just to be safe.  They will do an exam under anesthesia in about a month (soonest that 3 specialist could get together).  One is a cataract specialist and one a glaucoma specialist.  The Dr we saw, feels that there would be no use in having cataract surgery, as there are so many "layers" to Waid's problems, surgery would not help him to see any better, and could damage other parts of his eyes. 
No Dr (this was our 3rd appt) has mentioned Peter's Anomaly since we have been home.  So I asked, since it had not been mentioned, did this mean it is not a concern.  This Dr, who so carefully chose his words before, was shocked that I knew anything about PA.--I thought to myself--he does not realize this isn't our 1st special needs adoption, and we do our homework.  Then he said that, actually, it was what he was thinking Waid has. 
So now we wait.....

3 comments:

  1. What a blessing it was to see you and Waid at CBS Thursday. You are such an encouragement to me.

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  2. It's always easier to move forward with the facts, so I'm sure there is some peace for you after having this meeting.

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  3. Hey girl, just doing my blog catching up...so far behind! Sorry you had to hear the same news but hopefully it will erase any doubts about his diagnosis.

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